Tag Archives: chordoma foundation

Time to Cry Tuesday – Cure Chordoma (update 2)

Artwork: Scott Migden

A young man loses a valiant fight. His world grieves. There are no words.

I will quote but a few, gleaned from his peers:

Courage.

Grace.

Honor.

Compassion.

Perseverance.

Insightful.

Inspiration.

Brother.

Pride.

UPDATE 2 TO POST (an evolving project):

During the years that this family Lived (with a capital L) through the horror of this disease, there was a very special organization that helped them through. Friendsofkaren.org provides emotional, financial, and advocacy for children with life-threatening illnesses and their families, in order to help keep them stable, functioning, and able to cope. This organization made a huge difference in the lives of the entire family. If you are touched by this story and feel it in your hearts to honor this remarkable young man, you can donate here in memory of Tyler Seaman.

As always, The Chordoma Foundation continues to fight the fight for a cure every day. Their mission is is to improve the lives of chordoma patients by rapidly developing effective treatments and ultimately a cure for this devastating disease. They too, are a charity of choice for this family. You can read more about this disease here. If you so choose, Tyler’s family each has a fundraising page on their sight. You can donate through his mom here, his dad here and his brother here.

What do you want me to do, to do for you to see you through?

A box of rain will ease the pain, and love will see you through.

Just a box of rain,

wind and water

Believe it if you need it, if you don’t just pass it on

Sun and shower,

wind and rain

In and out the window like a moth before a flame

And it’s just a box of rain, I don’t know who put it there,

Believe it if you need it, or leave it if you dare.

And it’s just a box of rain, or a ribbon for your hair;

Such a long, long time to be gone, and a short time to be there.

– Robert Hunter, Phil Lesh


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Filed under Time to Cry Tuesdays

Time to Cry Tuesday – Please Help

camp-boys1

Oy, talk about time to cry…

This post hits very close to home for my family.

I have written about my kids experience at the summer camp that both my husband and I attended. Friendships made there are ones that run deep and last a lifetime. My son spent this past summer as a waiter; the ultimate summer at this camp. For those who do not know the culture it is hard to understand how seven weeks can make such an impact on a young man’s life. But for the lucky few there is an understanding of what it means to know that each and every one of their boys will always have their back. It is a sense of belonging that can not be duplicated.

Sadly, one of these young men is battling a very serious illness and we all need to have his back. This is a 16-year-old boy that we have known for many years. He is part of our extended camp family and when he falls we bleed.

He is one of 594 patients who are members of the Chordoma Foundation

In less than two years the Chordoma Foundation has done some VERY promising research which could lead to new treatments in time to benefit those living with chordoma today!

But this research cannot happen without funding. Many researchers have projects ready to start immediately but are simply waiting for one thing – money.

Please join me in helping these families reach their goal of raising $300,000 by the end of 2008. If all 594 patients and family members pledged to donate and/or raise $500 by the end of the year they can get pretty damn close.  Any amount will help, it all adds up.

It is a custom in our family to donate one night’s hannukah gift to a charity. This year it is an honor to do so to help our friend. I urge you all to consider a similar donation, one less present at the holiday is a small price to pay for such a huge gift to those in dire need.

This young man’s brother has created an online Chordoma Community. Through this website, donations made in his name can be tracked. Please make your donation in honor of his mom, my friend Diane Seaman. This season let’s give this family the gift of hope.

Thank you all from the bottom of my heart.

Bloggers and Twitterers, please link, digg, kirsty, stumble, RT and whatever else you can do to help pass this along. Follow me on Twitter @amyz5 with the hashtag #chordomahelp.

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Filed under charity, friendship, teenagers, Time to Cry Tuesdays